Professional Societies
WOCN Referral Database – Find an ET
- WOCN Patient Info
- American Society of Colon & Rectal Surgeons
- American College of Surgeons
- Ostomy Home Skills Kit
- American Gastroenterological Association
- American Medical Association
- American Urological Association
- Ostomy Wound Management Journal
- Journal of the American Medical Association
- Gastroenterology
- Journal of the National Cancer Institute
- New England Journal of Medicine
- Journal of Urology
Related Support Organizations
- United Ostomy Associations of America
- International Ostomy Association
- United Ostomy Association of Canada
- Ostomy Lifestyle – a UK charity providing ostomy support and information
- Italian Federation of Ostomy Associations
- Friends of Ostomates Worldwide – USA (They take donations of excess Ostomy Supplies – 4018 Bishop Lane, Louisville, Kentucky 40218
– 502-909-6669) - Friends of Ostomates Worldwide – Canada
- Osto Group (They take donations of excess Ostomy Supplies for ostomates without insurance in the U.S. 15070 Corporate Road North, Jupiter Florida 33478 – 877-678-6690)
- Crohn’s & Colitis Foundation of America
- Crohn’s & Colitis Foundation of Canada
- Oley Foundation (for people on intravenous or tube-fed nutrition)
- Association for the Bladder Exstrophy Community
- Intense Intestines Foundation
- Youth Rally
- Get Your Guts in Gear (IBD Ride)
- IDEAS (Intestinal Disease Education and Awareness Society)
- Uncover Ostomy (project supported by UOAA and IDEAS)
- International Foundation for Functional Gastrointestinal Disorders
- National Association For Continence
- The Colon Club
- The J-Pouch Group
- Quality Life Association (for Continent Ileostomates)
- The Great Bowel Movement (Awareness & Empowerment for IBD & Ostomy)
Discussion Boards
- UOAA Discussion Board
- Shaz’s Ostomy Message Board
- Ostomyland Message Board
- Colon Club Message Board
- J-Pouch Site Discussion Board
- IBD Sucks! (see esp. “Dear Baggy”)
- DragonPack.com IBD Support
- alt.support.ostomy Newsgroup
- alt.support.crohns-colitis Newsgroup
Ostomy Chat Rooms
- Ostomyland IRC Chat – Saturdays, 8:00 pm UK time
- Yahoo UK Ostomy Support – 1st & 3rd Sundays, 8:00 pm UK time
- Yahoo Peoples with Ostomy2 – Mondays, 8:00 pm US Central time
Colon Cancer
- Prevent Cancer Foundation
- Prevent Cancer: Colorectal
- Colon Cancer Alliance
- The Colon Club
- Colon Cancer Resources from Elsevier’s OncologySTAT
- Colorectal Cancer Coalition
- What Is Colorectal Cancer? (MayoClinic)
- The HPV & Anal Cancer Foundation
Bladder Cancer
Cancer – General
- American Cancer Society
- Cancer Care, Inc
- Cancer Hope Network
- Cancer Nutrition Center
- Cancer Resources (Univ. Nebraska)
- Cancerconnect.com
- Association of Cancer Online Resources
- National Breast Cancer Coalition
- National Cancer Insitute (NCI)
- National Coalition for Cancer Survivorship (NCCS)
- OncoLink – U. Penn. Cancer Resource Center
- Vital Options TeleSupport Cancer Network
- The Wellness Community
- Taking The Fear Out Of Cancer
- Fighting Chance (Counseling and Resource Center for Cancer Patients)
Ostomy Group Newsletters
- Raleigh NC The By-Pass
- North Central OK Ostomy Outlook
- Philadelphia PA Journal Online
- Jacksonville FL TheMailbag
- Vancouver BC HighLife
- Winnipeg MB Inside Out
Ostomy Sites by Individuals
Provided as a courtesy by UOAA. These sites are the work of individuals and do not represent any organization.
- Shaz’s Ostomy Page by Sharon Sandells
- Ostomyland by Jason Dale
- Uncover Ostomy by Jessica Grossman
- Love For Mutant Guts blog by Alyssa Zeldenrust
- A Guide To Living With A Stoma by Jean
- Living Bigger with Colostomy blog by Paul Riome
- Crohn’s/Colitis Home Page by Bill Robertson
- Evansville Ostomy News by Larry Trapp
Advocacy Related Links
- Advocacy for Patients with Chronic Illness (help with various legal issues)
- U.S. House of Representatives Home Page
- U.S. Senate Home Page
- Americans with Disabilities Act Page
- Fedstats (statistics from over 100 US Federal agencies)
- Assoc. of Community Cancer Centers (Advocacy for people living with cancer)
- Patient Advocate Foundation
- Digestive Disease National Coalition (DDNC)
- One Voice Against Cancer (coalition of non-profit organizations advocating for cancer-related appropriations)
- Stop Medicare Fraud
- FirstGov for Consumers (US Government Consumer Info)
- US Government Printing Office (Access to Government Info Products)
- TRICARE, US Military Health System
- Partnership for Prescription Assistance (coalition of pharmaceutical companies, health care providers and advocacy groups)
Child Related Links
- The Pull-thru Network (Congenital colorectal, anorectal and urogenital malformations)
- aboutKidsGI.org (Gastrointestinal & motility disorders)
- Growing Up IBD
- Paediatric Continence Association of Australia
- Spina Bifida Association of America
- Band-Aides & Blackboards
- Council for Exceptional Children
- Family Village
Women Related Links
- Ostomy and Jpouch Moms (Facebook closed group)
- Girls With Guts (Girls with IBD Inspiring each other)
- ChronicBabe.com (for Young Women with Chronic Health Issues)
- Keep Working, Girlfriend (Blog about maintaining a career while living with chronic illness)
- HealthyWomen (an independent health information source for women)
- National Family Caregivers Association
Medical Information
- PubMed (MEDLINE) Search
- MEDLINEplus (more consumer oriented medical info)
- National Library Of Medicine
- National Network of Libraries of Medicine
- National Institute of Diabetes, Digestive & Kidney Diseases
- UCLA Digestive Diseases Division
- Univ of Louisville Colon & Rectal Surgery
- ArthritisInsight.com
- The Virtual Body (virtual anatomy lesson from ehc.com)
- Short Bowel Support
- International Adhesions Society
- Percutaneous Cecostomy
- Now You Have a Diagnosis: What’s Next? (US Gov’t Agency for Healthcare Research & Quality)
- ClinicalTrials.gov (US National Institutes of Health)
- ClinicalTrials.com (Pharmaceutical Research Plus, Inc)
- CiteHealth (find reports on healthcare providers)
Food & Nutrition
General Health Information
- Health Finder (US Government Gateway to Health Information)
- World Health Organization (WHO)
- American Public Health Association
- National Institutes of Health
- www.health.gov (portal to US Government health sites)
- National Health Information Center
- MayoClinic.com
- HealthWorld Online
- USA Today Health topics index
- Stanford University Health Library
- Ask Dr. Weil
- Cumulative Trauma Disorder (CTD) News
- Transitions – Self-Esteem Program
- Dr. Mirkin’s Health Site
- Birth Defects Research for Children
- HealingWell.com – Crohn’s/Colitis Resources